Friday, June 4, 2010


I'm afraid to check the mail these days. The bills are starting to pile up. One from the MRI, then I pay for the Northwestern Faculty Foundation (the doctors), then the Northwestern Hospital itself. The MRI is $400, so far the NFF has raised (and will continue to raise as my insurance finalizes claims) to $600, and I checked the NWH and it's above $2000. My deductible is $3000 but it's still a hefty price for someone whose saving for a wedding and really scraping the bottom of the barrel. I'm going to apply for financial assistance by giving them my student loan award letter (shows them how much tax I'm paid on the loan last  year) and my W2... blah, blah, blah. Last year they lowered it from $2500 to $800. I'll keep my fingers crossed, but it's really the other bills tacked on the are killing me. $100 here, $100 there, each doc appointment is $30. I'm already on a payment plan from ATI physical therapy (shoulder surgery) for $50 a month for 18 months...

You shouldn't have to save up to be sick.

Tuesday, June 1, 2010

Seizure 5/31/10

I had a new seizure on Memorial Day evening. I fell asleep early on the couch because we had a big day of driving home from my parents house in Wisconsin (plus I over ate).

These seizures happen (for me) when I'm asleep are relatively small but larger than the ones I've talked about when I'm awake. My head tilts to the right, my lips quiver, and my right arm tightens slightly. When I wake up I feel very confused, I have a headache and when Sara asks me questions I know the answer but I can't verbalize them.

She was asking me questions and all I could do was look at her and smile in embarrassment.

Today I feel "blips", little sharp dizzy feelings that follow a day like yesterday. It almost feels like I'm going to fall into another seizure if allowed to go to sleep.

I'm obviously angry. I was doing so well. I hadn't had one of these kinds of seizures in months, just the small awake ones (which I was sure we could control). The bigger sleeping ones mean three more months of no driving for sure. My doctor moved around my medications, past the drug with kidney stone side effects and on a new drug that's really expensive ($100/month) but if it works, I'm game.