Yesterday I received confirmation that I was approved for Social Security Disability benefits. This means several things to my family and I, more than just money. Of course, we'll be able to live and pay some of my medical expenses, but it also means freedom. By freedom it means that I'm no longer just sick and unemployed; it means I'm a human being that has been recognized by the higher powers that needs help doing the everyday things that a lot of people take for granted.
After hearing the news, I had a very strong seizure... irony at it's best. This was the kind of seizure that lasts for hours; I'm comatose and generally slow to respond, staring at walls and such. I've noticed that it's not at the moment of stress where I have a problem, it's when I'm coming down from stress. Deep down I must've been very worried about the disability business because it happened almost immediately.
Now that I have this freedom, I have to make plans for what I'm going to do with my time. Of course I have a new IVIg (Intravenous Immunoglobulin) treatment coming up, but after that I'd like to insert myself into a small percentage of society. I see myself volunteering, using photography more to convey what my life is like, the list is short but growing. There's a lot to think about when it comes to this, so while I'm receiving the IVIg, I can hone the plan a bit.
Generally, I'm happy, despite the seizures. It's just nice to be accepted... in more ways than just a number.
I'll do some more research on this but I would like to, again, mention the donation blood or plasma.
Tuesday, May 21, 2013
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