Tuesday, July 23, 2013

A Voice to Share

It's been over two months since the last steroid treatments; we've been waiting for the new IVIg treatment to start. The IVIg treatment isn't "officially" designed to treat epilepsy, that's why all of the doctors surrounding me have been using words like "experimental," or "let's just give it a try." Not very helpful words for someone trapped in their house for months on end.

I had another seizure last night. This one was different, (like all of them), it lasted for 15-20 seconds but stayed at a steady intensity, instead of shooting to a point where I lose consciousness. The time after was spent in a nauseous, weepy state; it feels like (without exaggeration) that something horrible has happened around you and all you can do in hunch over and try not to vomit. Needless to say, I slept the rest of the afternoon and into the night.


I paused because I had a little "problem" while writing. I was listening to music and I had no comprehension that songs could be recorded and not sung live. It felt like I needed to look around for someone singing this song. Seizures sound pretty poetic when portrayed like this, I guess.


I'm trying to use Facebook (facebook.com/smithjryan) and Twitter (@smithjryan) to connect with others, not just friends, but hopefully others with Epilepsy. It helps to know that there are others who have Epilepsy and have a voice with which to share.