Seizure Day

Thursday, July 24th, 2014. Seizure Day.

7:30am:
Wake up to Sara getting ready for work. I take off my apnea mask, rub my eyes and make my way to the kitchen.

7:45am:
Eating Cheerios, and a banana. The medication from the night before gives me "gut rot" so I need to drink a lot of fluids. Basically, what someone would do after a night of light drinking.

8:00am:
I'm watching the morning news as Sara leaves for work. I play on eBay, Facebook and Twitter, getting the handle on what I'm going to do today. I feel as though I'm a little pissed for no reason. Probably, from my last seizure. This will usually change when I have my next seizure, (Interictal Psychosis).

10:30am:
I'm ready to take my medicine:
Vimpat, 200mg
Lamictal: 300mg
Geodon: 60mg
Sabril: 500mg

11:00am:
I get ready for the day, shower. It's too hot for a bike ride, or a walk. I don't want to risk having a seizure, plus I have nowhere I want to go. I will probably have to stay in today. The medicine is kicking in. My lips are numb. It's probably time to lay down.

2:00pm:
Waking up from my nap a little groggy. I'm hungry again. I get up and make my way to the kitchen. I'm in the kitchen, but don't remember the walk from the bedroom. I note that in my seizure diary.

4:00pm:
Sara's coming home soon. I put on some music loud and give the apartment a "once over" cleaning.

5:30pm:
Sara's home, and she's getting ready for dinner with her friend in the city. She brought me tacos.

6:30pm:
I've eaten, and Sara's on her way to the city. I'm watching TV. I feel another little "twitch". I decide that it was nothing, and go back to playing on the iPad, and watching TV.

8:00pm:
I put down the iPad, and stare at the TV for just a second.

8:05pm:
I feel an aura, (a feeling normal people would pay to feel). The seizure is starting. I start smacking my lips and swallowing over and over. I notice that I've already taken out my VNS magnet and swiped it over my chest because I usually swipe with my right hand, then move it to my left hand because my right side goes completely numb during a seizure. Muscle memory.

8:06pm:
I feel my head turning to the right for no reason. I have no control of my body anymore.

8:15pm:
(*Notice that I've skipped 9 minutes. This means that I lost consciousness. A "Bad One," as I call them.) I'm awake again, still on the couch. The room looks so different as if I was in a stranger's house. I'm looking around, checking out every room. Almost a dream-like state. I wouldn't be able to tell you my name, or understand english if you were asking me questions.

8:17pm:
I decide that I need to get ready for bed for some reason. I need to turn off the TV and all of the lights, except I've forgotten how they turn off. I start unplugging the lights. This all seems perfectly logical to me. "I don't know why the lights and TV wouldn't come with an on/off switch."

8:25pm:
I've found my way to the bedroom where I lay down. Not to sleep, but just to lay. Still in a dream.

8:35pm:
I'm coming out of the "fog" and remember that I had a seizure. I'm still groggy, but I make my way around the house to plug in all of the lights and TV. I know that I have to take my medicine. I feel like I'm ok to remember how to do that:

Vimpat, 200mg

Lamictal: 300mg

Geodon: 60mg

Sabril: 500mg

Phenobarbital: 194.4mg

Allergra: 180mg

Ativan: 2mg (This is the emergency medication for after a seizure)

9:54pm:

I text Sara to let her know that I had a seizure.

10:45pm:

Sara's home and I'm all ready for bed. Apnea machine filled with water, teeth brushed, the works. I remembered how to do everything... good. Sara and I talk for a while about the seizure, and she reminds me to describe it as best I can in my seizure diary. I'll remember more about the seizure tomorrow.

11:00pm:

I'm asleep. Tomorrow, repeat.